From: owner-joni-digest@smoe.org (JMDL Digest) To: joni-digest@smoe.org Subject: JMDL Digest V2011 #138 Reply-To: joni@smoe.org Sender: owner-joni-digest@smoe.org Errors-To: owner-joni-digest@smoe.org Precedence: bulk Unsubscribe: mailto:joni-digest-request@smoe.org?body=unsubscribe Website: http://jmdl.com JMDL Digest Thursday, May 12 2011 Volume 2011 : Number 138 ========== TOPICS and authors in this Digest: -------- RE: Article on Morgellons ["Marian" ] Lieve good things, njc [Marianne Rizzo ] RE: Article on Morgellons [Susan Tierney McNamara ] RE: Article on Morgellons ["Marian" ] Re: Article on Morgellons [Gerald Notaro ] RE: Article on Morgellons [Susan Tierney McNamara ] Re: lisa hannigan covers joni's "willy" [Mags ] purple, tiny jc [Stewart.Simon@sunlife.com] purple, tiny jc [Lc Stanley ] Re: Article on Morgellons [Catherine McKay ] Re: Article on Morgellons [Lc Stanley ] Re: Article on Morgellons [Gerald Notaro ] Re: purple, tiny jc [waytoblue@comcast.net] RE: Article on Morgellons [Susan Tierney McNamara ] Re: purple, njc [Paul Castle ] Re: purple, njc [Catherine McKay ] Happy 35th Birthday Hejira [Bob Muller ] ---------------------------------------------------------------------- Date: Wed, 11 May 2011 01:09:34 -0700 From: "Marian" Subject: RE: Article on Morgellons I did not find the article in The Guardian very illuminating and,in fact, felt that it might lead even more people to believe thedelusional parasitosis explanation. I guess this is just anotherexample of the mainstream media simply regurgitating information found elsewhere, and not even the most useful bitsand pieces - an article for the sake of writing something (no criticism of Joe intended), valuable only possibly for getting the word "Morgellons" into public consciousness. I am interested in this disease because of learning that Joni has it and also because it sounds so terrible that if I or any loved one ever got it, I would want to know what to do about it. Recently, I found a post in a Morgellons forum by a woman who calls herself Kelly Morgellon. She has Morgellons and has probably tried everything possible toget rid of it. She has been seeing a doctor who has written a book entitled "Is Your Pet Safe?: Morgellon's Disease-A new parasitic disease may be transmitted by pets". I think a more apt title might have been "Are You Safe From Your Pet?: A summary of parasitic diseases that you can get fromyour cat or dog.", because the book covers a lot of other types of parasites that cats and dogs carry that can be transmittedto humans, but anyway, it does have at least one chapter on Morgellons. The author, Neelam Taneja-Uppal MD, is convinced that Morgellons is caused by a parasite and that the symptoms (crawling sensations under the skin, stinging/biting/itching, black specks around the eyes, red, blue, black and white fibres extruding from lesions) are the various stages of the life-cycle of this parasite. She has been treating her patients with anti-parasitic medications with varying degrees of success, the "varying degrees" attributed to probable reinfection because of remnants of the parasite that are hard to clean away entirely once having invaded one's home. Beyond the terrible symptoms and the lack of knowledge in the medical community which leads doctors to blame the victims by diagnosing them with delusional parasitosis, Morgellons is very contageous and must result in people feeling like they have a kind of modern-day leprosy. It must result in isolation and lonliness, in addition to the physical misery. I think about Jonialmost every day and wish for her that she can find, or better yet*is* finding, relief from this terrible disease. Marian > Date: Tue, 10 May 2011 11:57:31 -0400 > From: Susan Tierney McNamara > Subject: RE: Article on Morgellons > > Hi Joe, > > I read this article in horror! At first I felt like I was in > the middle of an X-files episode where Scully is arguing > the scientific precedents and Muldar is expounding on > conspiracy and alien abduction! I think the article ends > with an interesting theory about the mechanisms of > nerve endings and why we itch. It reminded me of > fibromyalgia, which is now recognized as a disease > of the nervous system. I think it will be discovered in > time that there is a rational explanation for what is > causing this horrible ailment. The human body has so > many undiscovered frontiers. It makes me sad that Joni > has to endure this after all the amazing gifts she has > given us. Thanks for forwarding the article. > > Sue > - -----Original Message----- > From: owner-joni@smoe.org [mailto:owner-joni@smoe.org] On Behalf Of Joe Jones > Sent: Saturday, May 07, 2011 5:57 AM > To: joni@smoe.org > Subject: Article on Morgellons > > Greeting from Wales. > > I think Joni has mentioned suffering from this. > > http://www.guardian.co.uk/lifeandstyle/2011/may/07/morgellons-myst erious-illness > > np - Mermaid Avenue Vol.1 - Billy Bragg and Wilco. > > Joe Jones > +44 7831 914094 ------------------------------ Date: Wed, 11 May 2011 08:11:26 -0400 From: Marianne Rizzo Subject: Lieve good things, njc Hi Lieve, I got that particular email. It was interesting. Maybe all of this happened to send you positive Lieve energy. . . . May all your dreams come true "here's to you." everybody send good vibes and all dreams coming true to the wonderful Lieve okay Lieve, after we send good vibes, and postive energy and wishes for all good things ,can you tell us how to pronounce yor name again// I think you told me once that it is: Liev a XO Marianne ------------------------------ Date: Wed, 11 May 2011 09:25:35 -0400 From: Susan Tierney McNamara Subject: RE: Article on Morgellons Thanks for your take on this article, Marian. Is Kelly Morgellon the person the disease is named after? Sue - -----Original Message----- From: owner-joni@smoe.org [mailto:owner-joni@smoe.org] On Behalf Of Marian Sent: Wednesday, May 11, 2011 4:10 AM To: joni@smoe.org Subject: RE: Article on Morgellons I did not find the article in The Guardian very illuminating and,in fact, felt that it might lead even more people to believe thedelusional parasitosis explanation. I guess this is just anotherexample of the mainstream media simply regurgitating information found elsewhere, and not even the most useful bitsand pieces - an article for the sake of writing something (no criticism of Joe intended), valuable only possibly for getting the word "Morgellons" into public consciousness. I am interested in this disease because of learning that Joni has it and also because it sounds so terrible that if I or any loved one ever got it, I would want to know what to do about it. Recently, I found a post in a Morgellons forum by a woman who calls herself Kelly Morgellon. She has Morgellons and has probably tried everything possible toget rid of it. She has been seeing a doctor who has written a book entitled "Is Your Pet Safe?: Morgellon's Disease-A new parasitic disease may be transmitted by pets". I think a more apt title might have been "Are You Safe From Your Pet?: A summary of parasitic diseases that you can get fromyour cat or dog.", because the book covers a lot of other types of parasites that cats and dogs carry that can be transmittedto humans, but anyway, it does have at least one chapter on Morgellons. The author, Neelam Taneja-Uppal MD, is convinced that Morgellons is caused by a parasite and that the symptoms (crawling sensations under the skin, stinging/biting/itching, black specks around the eyes, red, blue, black and white fibres extruding from lesions) are the various stages of the life-cycle of this parasite. She has been treating her patients with anti-parasitic medications with varying degrees of success, the "varying degrees" attributed to probable reinfection because of remnants of the parasite that are hard to clean away entirely once having invaded one's home. Beyond the terrible symptoms and the lack of knowledge in the medical community which leads doctors to blame the victims by diagnosing them with delusional parasitosis, Morgellons is very contageous and must result in people feeling like they have a kind of modern-day leprosy. It must result in isolation and lonliness, in addition to the physical misery. I think about Jonialmost every day and wish for her that she can find, or better yet*is* finding, relief from this terrible disease. Marian > Date: Tue, 10 May 2011 11:57:31 -0400 > From: Susan Tierney McNamara > Subject: RE: Article on Morgellons > > Hi Joe, > > I read this article in horror! At first I felt like I was in > the middle of an X-files episode where Scully is arguing > the scientific precedents and Muldar is expounding on > conspiracy and alien abduction! I think the article ends > with an interesting theory about the mechanisms of > nerve endings and why we itch. It reminded me of > fibromyalgia, which is now recognized as a disease > of the nervous system. I think it will be discovered in > time that there is a rational explanation for what is > causing this horrible ailment. The human body has so > many undiscovered frontiers. It makes me sad that Joni > has to endure this after all the amazing gifts she has > given us. Thanks for forwarding the article. > > Sue > - -----Original Message----- > From: owner-joni@smoe.org [mailto:owner-joni@smoe.org] On Behalf Of Joe Jones > Sent: Saturday, May 07, 2011 5:57 AM > To: joni@smoe.org > Subject: Article on Morgellons > > Greeting from Wales. > > I think Joni has mentioned suffering from this. > > http://www.guardian.co.uk/lifeandstyle/2011/may/07/morgellons-myst erious-illness > > np - Mermaid Avenue Vol.1 - Billy Bragg and Wilco. > > Joe Jones > +44 7831 914094 ------------------------------ Date: Wed, 11 May 2011 06:36:49 -0700 From: "Marian" Subject: RE: Article on Morgellons Hi Sue! Here's some info about the history from this link (I think the original source may have been Wikipedia): http://www.morgellons-disease-research.com/history-of-morgellons-dise ase.html "The name Morgellons was coined in 2002 by Mary Leitao of McMurray, PA, while investigating her son's unexplained rash. She named the condition Morgellons (with a hard g), after a condition from the monograph A Letter to a Friend by Sir Thomas Browne, in 1690, wherein he describes several medical conditions in his experience, including that endemial distemper of children in Languedoc, called the morgellons, wherein they critically break out with harsh hairs on their backs." I am sure that Kelly Morgellon is a pseudonym. She sent me a LOT of information about her specific medications. Hopefully I will never need to refer to it! -------- Original Message -------- Subject: RE: Article on Morgellons From: Susan Tierney McNamara Date: Wed, May 11, 2011 3:25 pm To: Marian , "joni@smoe.org" Thanks for your take on this article, Marian. Is Kelly Morgellon the person the disease is named after? Sue - -----Original Message----- From: owner-joni@smoe.org [mailto:owner-joni@smoe.org] On Behalf Of Marian Sent: Wednesday, May 11, 2011 4:10 AM To: joni@smoe.org Subject: RE: Article on Morgellons I did not find the article in The Guardian very illuminating and,in fact, felt that it might lead even more people to believe thedelusional parasitosis explanation. I guess this is just anotherexample of the mainstream media simply regurgitating information found elsewhere, and not even the most useful bitsand pieces - an article for the sake of writing something (no criticism of Joe intended), valuable only possibly for getting the word "Morgellons" into public consciousness. I am interested in this disease because of learning that Joni has it and also because it sounds so terrible that if I or any loved one ever got it, I would want to know what to do about it. Recently, I found a post in a Morgellons forum by a woman who calls herself Kelly Morgellon. She has Morgellons and has probably tried everything possible toget rid of it. She has been seeing a doctor who has written a book entitled "Is Your Pet Safe?: Morgellon's Disease-A new parasitic disease may be transmitted by pets". I think a more apt title might have been "Are You Safe From Your Pet?: A summary of parasitic diseases that you can get fromyour cat or dog.", because the book covers a lot of other types of parasites that cats and dogs carry that can be transmittedto humans, but anyway, it does have at least one chapter on Morgellons. The author, Neelam Taneja-Uppal MD, is convinced that Morgellons is caused by a parasite and that the symptoms (crawling sensations under the skin, stinging/biting/itching, black specks around the eyes, red, blue, black and white fibres extruding from lesions) are the various stages of the life-cycle of this parasite. She has been treating her patients with anti-parasitic medications with varying degrees of success, the "varying degrees" attributed to probable reinfection because of remnants of the parasite that are hard to clean away entirely once having invaded one's home. Beyond the terrible symptoms and the lack of knowledge in the medical community which leads doctors to blame the victims by diagnosing them with delusional parasitosis, Morgellons is very contageous and must result in people feeling like they have a kind of modern-day leprosy. It must result in isolation and lonliness, in addition to the physical misery. I think about Jonialmost every day and wish for her that she can find, or better yet*is* finding, relief from this terrible disease. Marian > Date: Tue, 10 May 2011 11:57:31 -0400 > From: Susan Tierney McNamara > Subject: RE: Article on Morgellons > > Hi Joe, > > I read this article in horror! At first I felt like I was in > the middle of an X-files episode where Scully is arguing > the scientific precedents and Muldar is expounding on > conspiracy and alien abduction! I think the article ends > with an interesting theory about the mechanisms of > nerve endings and why we itch. It reminded me of > fibromyalgia, which is now recognized as a disease > of the nervous system. I think it will be discovered in > time that there is a rational explanation for what is > causing this horrible ailment. The human body has so > many undiscovered frontiers. It makes me sad that Joni > has to endure this after all the amazing gifts she has > given us. Thanks for forwarding the article. > > Sue > - -----Original Message----- > From: owner-joni@smoe.org [mailto:owner-joni@smoe.org] On Behalf Of Joe Jones > Sent: Saturday, May 07, 2011 5:57 AM > To: joni@smoe.org > Subject: Article on Morgellons > > Greeting from Wales. > > I think Joni has mentioned suffering from this. > > htt p://www.guardian.co.uk/lifeandstyle/2011/may/07/morgellons-myst erious -illness > > np - Mermaid Avenue Vol.1 - Billy Bragg and Wilco. > > Joe Jones > +44 7831 914094 ------------------------------ Date: Wed, 11 May 2011 10:05:39 -0400 From: Gerald Notaro Subject: Re: Article on Morgellons I have to emphasize that the vast majority of doctors, scientists, researchers, and health professionals believe the condition is delusional and not a medical condition. That does not mean the sufferers don't have symptoms, but the medical evidence is the sores are caused but scratching what the sufferers believe are parasites or bugs. Jerry On Wed, May 11, 2011 at 9:36 AM, Marian wrote: > Hi Sue! Here's some info about the history from this link (I think the > original source may have been Wikipedia): > http://www.morgellons-disease-research.com/history-of-morgellons-dise > ase.html"The name Morgellons was coined in 2002 by Mary Leitao of > McMurray, PA, while investigating her son's unexplained rash. She named > the condition Morgellons (with a hard g), after a condition from the > monograph A Letter to a Friend by Sir Thomas Browne, in 1690, wherein he > describes several medical conditions in his experience, including that > endemial distemper of children in Languedoc, called the morgellons, > wherein they critically break out with harsh hairs on their backs." I am > sure that Kelly Morgellon is a pseudonym. She sent me a LOT of > information about her specific medications. Hopefully I will never need > to refer to it! -------- Original Message -------- > Subject: RE: Article on Morgellons > From: Susan Tierney McNamara > Date: Wed, May 11, 2011 3:25 pm > To: Marian , "joni@smoe.org" > > Thanks for your take on this article, Marian. Is Kelly Morgellon the > person the disease is named after? Sue > > -----Original Message----- > From: owner-joni@smoe.org [mailto:owner-joni@smoe.org] On Behalf Of > Marian > Sent: Wednesday, May 11, 2011 4:10 AM > To: joni@smoe.org > Subject: RE: Article on Morgellons > > I did not find the article in The Guardian very illuminating and,in fact, > felt that it might lead even more people to believe thedelusional > parasitosis explanation. I guess this is just anotherexample of the > mainstream media simply regurgitating information found elsewhere, and > not even the most useful bitsand pieces - an article for the sake of > writing something (no criticism of Joe intended), valuable only possibly > for getting the word "Morgellons" into public consciousness. I am > interested in this disease because of learning that Joni has it and also > because it sounds so terrible that if I or any loved one ever got it, I > would want to know what to do about it. Recently, I found a post in a > Morgellons forum by a woman who calls herself Kelly Morgellon. She has > Morgellons and has probably tried everything possible toget rid of it. > She has been seeing a doctor who has written a book entitled "Is Your Pet > Safe?: Morgellon's Disease-A new parasitic disease may be transmitted by > pets". I think a more apt title might have been "Are You Safe From Your > Pet?: A summary of parasitic diseases that you can get fromyour cat or > dog.", because the book covers a lot of other types of parasites that > cats and dogs carry that can be transmittedto humans, but anyway, it does > have at least one chapter on Morgellons. The author, Neelam Taneja-Uppal > MD, is convinced that Morgellons is caused by a parasite and that the > symptoms (crawling sensations under the skin, stinging/biting/itching, > black specks around the eyes, red, blue, black and white fibres extruding > from lesions) are the various stages of the life-cycle of this parasite. > She has been treating her patients with anti-parasitic medications with > varying degrees of success, the "varying degrees" attributed to probable > reinfection because of remnants of the parasite that are hard to clean > away entirely once having invaded one's home. Beyond the terrible > symptoms and the lack of knowledge in the medical community which leads > doctors to blame the victims by diagnosing them with delusional > parasitosis, Morgellons is very contageous and must result in people > feeling like they have a kind of modern-day leprosy. It must result in > isolation and lonliness, in addition to the physical misery. I think > about Jonialmost every day and wish for her that she can find, or better > yet*is* finding, relief from this terrible disease. Marian > Date: Tue, > 10 May 2011 11:57:31 -0400 > > From: Susan Tierney McNamara > > Subject: RE: Article on Morgellons > > > > Hi Joe, > > > > I read this article in horror! At first I felt like I was in > the > middle of an X-files episode where Scully is arguing > the scientific > precedents and Muldar is expounding on > conspiracy and alien abduction! > I think the article ends > with an interesting theory about the > mechanisms of > nerve endings and why we itch. It reminded me of > > fibromyalgia, which is now recognized as a disease > of the nervous > system. I think it will be discovered in > time that there is a rational > explanation for what is > causing this horrible ailment. The human body > has so > many undiscovered frontiers. It makes me sad that Joni > has to > endure this after all the amazing gifts she has > given us. Thanks for > forwarding the article. > > > > Sue > > - -----Original Message----- > > From: owner-joni@smoe.org [mailto:owner-joni@smoe.org] On Behalf Of Joe > Jones > > Sent: Saturday, May 07, 2011 5:57 AM > > To: joni@smoe.org > > Subject: Article on Morgellons > > > > Greeting from Wales. > > > > I think Joni has mentioned suffering from this. > > > > htt p://www.guardian.co.uk/lifeandstyle/2011/may/07/morgellons-myst > erious -illness > > > > np - Mermaid Avenue Vol.1 - Billy Bragg and Wilco. > > > > Joe Jones > > +44 7831 914094 ------------------------------ Date: Wed, 11 May 2011 10:16:07 -0400 From: Susan Tierney McNamara Subject: RE: Article on Morgellons How many people worldwide are we talking about? If we do buy the delusional diagnosis, does it happen in isolation or in a "mass hysteria" environment? If doctors are defaulting to a delusional diagnosis because they don't have enough information, why do they have to put a label on it? Do anti-depressants or anti-psychotics relieve the symptoms? I guess these are the questions that come to the top of my mind because of the way doctors turned around about Fibromyalgia (or was that because some pharmaceutical company came up with a drug and they needed a disease?) I'm feeling like I have both Scully and Muldar arguing in my head!! Forgive me!!! Take care, Sue From: Gerald Notaro [mailto:notaro@mail.usf.edu] Sent: Wednesday, May 11, 2011 10:06 AM To: Marian Cc: Susan Tierney McNamara; joni@smoe.org Subject: Re: Article on Morgellons I have to emphasize that the vast majority of doctors, scientists, researchers, and health professionals believe the condition is delusional and not a medical condition. That does not mean the sufferers don't have symptoms, but the medical evidence is the sores are caused but scratching what the sufferers believe are parasites or bugs. Jerry On Wed, May 11, 2011 at 9:36 AM, Marian > wrote: Hi Sue! Here's some info about the history from this link (I think the original source may have been Wikipedia): http://www.morgellons-disease-research.com/history-of-morgellons-dise ase.html "The name Morgellons was coined in 2002 by Mary Leitao of McMurray, PA, while investigating her son's unexplained rash. She named the condition Morgellons (with a hard g), after a condition from the monograph A Letter to a Friend by Sir Thomas Browne, in 1690, wherein he describes several medical conditions in his experience, including that endemial distemper of children in Languedoc, called the morgellons, wherein they critically break out with harsh hairs on their backs." I am sure that Kelly Morgellon is a pseudonym. She sent me a LOT of information about her specific medications. Hopefully I will never need to refer to it! -------- Original Message -------- Subject: RE: Article on Morgellons From: Susan Tierney McNamara > Date: Wed, May 11, 2011 3:25 pm To: Marian >, "joni@smoe.org" > Thanks for your take on this article, Marian. Is Kelly Morgellon the person the disease is named after? Sue - -----Original Message----- From: owner-joni@smoe.org [mailto:owner-joni@smoe.org] On Behalf Of Marian Sent: Wednesday, May 11, 2011 4:10 AM To: joni@smoe.org Subject: RE: Article on Morgellons I did not find the article in The Guardian very illuminating and,in fact, felt that it might lead even more people to believe thedelusional parasitosis explanation. I guess this is just anotherexample of the mainstream media simply regurgitating information found elsewhere, and not even the most useful bitsand pieces - an article for the sake of writing something (no criticism of Joe intended), valuable only possibly for getting the word "Morgellons" into public consciousness. I am interested in this disease because of learning that Joni has it and also because it sounds so terrible that if I or any loved one ever got it, I would want to know what to do about it. Recently, I found a post in a Morgellons forum by a woman who calls herself Kelly Morgellon. She has Morgellons and has probably tried everything possible toget rid of it. She has been seeing a doctor who has written a book entitled "Is Your Pet Safe?: Morgellon's Disease-A new parasitic disease may be transmitted by pets". I think a more apt title might have been "Are You Safe From Your Pet?: A summary of parasitic diseases that you can get fromyour cat or dog.", because the book covers a lot of other types of parasites that cats and dogs carry that can be transmittedto humans, but anyway, it does have at least one chapter on Morgellons. The author, Neelam Taneja-Uppal MD, is convinced that Morgellons is caused by a parasite and that the symptoms (crawling sensations under the skin, stinging/biting/itching, black specks around the eyes, red, blue, black and white fibres extruding from lesions) are the various stages of the life-cycle of this parasite. She has been treating her patients with anti-parasitic medications with varying degrees of success, the "varying degrees" attributed to probable reinfection because of remnants of the parasite that are hard to clean away entirely once having invaded one's home. Beyond the terrible symptoms and the lack of knowledge in the medical community which leads doctors to blame the victims by diagnosing them with delusional parasitosis, Morgellons is very contageous and must result in people feeling like they have a kind of modern-day leprosy. It must result in isolation and lonliness, in addition to the physical misery. I think about Jonialmost every day and wish for her that she can find, or better yet*is* finding, relief from this terrible disease. Marian > Date: Tue, 10 May 2011 11:57:31 -0400 > From: Susan Tierney McNamara > > Subject: RE: Article on Morgellons > > Hi Joe, > > I read this article in horror! At first I felt like I was in > the middle of an X-files episode where Scully is arguing > the scientific precedents and Muldar is expounding on > conspiracy and alien abduction! I think the article ends > with an interesting theory about the mechanisms of > nerve endings and why we itch. It reminded me of > fibromyalgia, which is now recognized as a disease > of the nervous system. I think it will be discovered in > time that there is a rational explanation for what is > causing this horrible ailment. The human body has so > many undiscovered frontiers. It makes me sad that Joni > has to endure this after all the amazing gifts she has > given us. Thanks for forwarding the article. > > Sue > - -----Original Message----- > From: owner-joni@smoe.org [mailto:owner-joni@smoe.org] On Behalf Of Joe Jones > Sent: Saturday, May 07, 2011 5:57 AM > To: joni@smoe.org > Subject: Article on Morgellons > > Greeting from Wales. > > I think Joni has mentioned suffering from this. > > htt p://www.guardian.co.uk/lifeandstyle/2011/may/07/morgellons-myst erious -illness > > np - Mermaid Avenue Vol.1 - Billy Bragg and Wilco. > > Joe Jones > +44 7831 914094 ------------------------------ Date: Wed, 11 May 2011 07:34:13 -0700 (PDT) From: Mags Subject: Re: lisa hannigan covers joni's "willy" Running way behind the times, vis a vis reading the list mail, however, I did go to the link on this one, and thank you so much for sharing this !! I love Lisa Hannigan's interpretation of Willy (one of my favourite songs that, for me, evokes so much emotion; rivers, in fact ;) Mags ------------------------------ Date: Wed, 11 May 2011 10:42:02 -0400 From: Stewart.Simon@sunlife.com Subject: purple, tiny jc Hi joni friends, I once had a dream (night time dream) about having a joni gathering in my yard. . . and turned to someone and said,"it is a personal as purple." so here are a few questions for you: 1. What joni lines have the word purple in them? 2. What songs of other's have purple? 3. who of you are purple perople? I love purple! LOve Marianne =================================================== I know of 2 other songs that have purple in the lyrics: Eminem - Purple Pills Rod Stewart - Purple Heather I love purple too :- )) - --------------------------------------------------------------------------- This e-mail message (including attachments, if any) is intended for the use of the individual or entity to which it is addressed and may contain information that is privileged, proprietary , confidential and exempt from disclosure. If you are not the intended recipient, you are notified that any dissemination, distribution or copying of this communication is strictly prohibited. If you have received this communication in error, please notify the sender and erase this e-mail message immediately. - --------------------------------------------------------------------------- ------------------------------ Date: Wed, 11 May 2011 08:25:18 -0700 (PDT) From: Lc Stanley Subject: purple, tiny jc Here is a purple song I love even though it is kind of corny... baby I don't care. http://www.youtube.com/watch?v=TBImNrLzwqc&feature=related ------------------------------ Date: Wed, 11 May 2011 08:34:58 -0700 (PDT) From: Catherine McKay Subject: Re: Article on Morgellons I have a really hard time with this stuff and I think your Scully/Muldar comment is right on. There is definitely a battle going on in my brain. I am not really sure what to think of this stuff and, because of my current job, I have spoken to a number of different people who say they have a particular disease or condition (I've never had a Morgellons one yet - knock on wood! but a lot of people who say they have CFS or fibromyalgia and even Lyme disease, that they can't get proper treatment for it.) I am not a health professional of any kind and it's frustrating for me to hear people's frustration over their condition and the difficulty they have getting what they feel is appropriate treatment. It does seem that the medical profession discounts what they're going through. The medical profession does seem to be still a stodgy and conservative one. Furthermore, a number of the people I've dealt with most likely do have a mental illness of some kind (Once again, as I am not a health professional, I am not able to diagnose!) but some of the other things some of them say make this apparent. So, it seems there are some people who may genuinely have a disease or condition that hasn't yet been properly recognized, whereas others simply believe they have a disease or condition. I also appreciate that, if you're experiencing something and not getting a good answer to what is going on, that, in turn, can create a level of anxiety and even paranoia, which makes me wonder which came first. I'm wondering why, if Morgellons might possibly be related to a parasite from pets, as the doctor mentioned earlier has suggested, why it hasn't shown up earlier. People have had cats and dogs as pets for centuries. Why would this come up now? On the other hand, there are oddball mutations such as SARS and H1N1 that are mutated versions of viruses that normally affect only certain animals (pigs, birds, other animals that we raise domestically) that crop up from time to time and, even though the odds tell us these mutations are going to occur at some point, we're never entirely sure when exactly they will show up, or in exactly what form, or where they will first arise, or how bad they will be. I also wondered whether or not Joni's case might be somehow linked to post-polio syndrome, but then wonder how many of the other people who believe they have Morgellons might have had polio. I would think this would have come up in at least one article, but there's no mention of people having had polio at some point. And, all the time I hear about this stuff, I feel itchy all over! The interesting thing to me is that some claim this is "an internet disease," whereas, as far as we know, Joni isn't into computers and unlikely to be surfing the net. I wonder where, or even if, she got the diagnosis? - ----- Original Message ---- > From: Susan Tierney McNamara > To: Gerald Notaro ; Marian > Cc: "joni@smoe.org" > Sent: Wed, May 11, 2011 10:16:07 AM > Subject: RE: Article on Morgellons > > How many people worldwide are we talking about? If we do buy the delusional > diagnosis, does it happen in isolation or in a "mass hysteria" environment? > If doctors are defaulting to a delusional diagnosis because they don't have > enough information, why do they have to put a label on it? Do anti-depressants > or anti-psychotics relieve the symptoms? I guess these are the questions that > come to the top of my mind because of the way doctors turned around about > Fibromyalgia (or was that because some pharmaceutical company came up with a > drug and they needed a disease?) I'm feeling like I have both Scully and > Muldar arguing in my head!! Forgive me!!! > > Take care, Sue > > From: Gerald Notaro [mailto:notaro@mail.usf.edu] > Sent: Wednesday, May 11, 2011 10:06 AM > To: Marian > Cc: Susan Tierney McNamara; joni@smoe.org > Subject: Re: Article on Morgellons > > I have to emphasize that the vast majority of doctors, scientists, > researchers, and health professionals believe the condition is delusional and > not a medical condition. That does not mean the sufferers don't have symptoms, > but the medical evidence is the sores are caused but scratching what the > sufferers believe are parasites or bugs. > > Jerry ------------------------------ Date: Wed, 11 May 2011 09:23:48 -0700 (PDT) From: Lc Stanley Subject: Re: Article on Morgellons Hi Sue, Just like with the popular negative press, there tends to be a negative focus on the medical community in regard to Morgellons. It is a waste of energy that could go into developing treatments in my opinion. Social culture more than the scientific minds of the medical community hold us back from making progress in treating illnesses. The medical community thrives by being open-minded. People of medicine have been directly responsible for an end to epileptics being categorized as possessed by demons and homosexuals being categorized as mentally ill. I find it interesting that the abnormal presence of fibers in the skin of those with Morgellons has been observed repeatedly to consist of cellulose. Cellulose is the indigestible part of plants that we consume as dietary fiber. It is not an animal product. Human cells do not produce cellulose; plant-type cells do. It would seem logical then to experiment with treatments against plant-type parasitic organisms and to use the enzyme, cellulase, to breakdown the fibers that cause detriment to the skin. I hope such experiments are happening. Love, Laura ________________________________ From: Susan Tierney McNamara To: Gerald Notaro ; Marian Cc: "joni@smoe.org" Sent: Wed, May 11, 2011 9:16:07 AM Subject: RE: Article on Morgellons How many people worldwide are we talking about? If we do buy the delusional diagnosis, does it happen in isolation or in a "mass hysteria" environment? If doctors are defaulting to a delusional diagnosis because they don't have enough information, why do they have to put a label on it? Do anti-depressants or anti-psychotics relieve the symptoms? I guess these are the questions that come to the top of my mind because of the way doctors turned around about Fibromyalgia (or was that because some pharmaceutical company came up with a drug and they needed a disease?) I'm feeling like I have both Scully and Muldar arguing in my head!! Forgive me!!! Take care, Sue ------------------------------ Date: Wed, 11 May 2011 12:26:50 -0400 From: Gerald Notaro Subject: Re: Article on Morgellons And to be clear, the name was not given by doctors or medical researchers, but by Mary Leitao, the mother whose son had the symptoms. Jerry On Wed, May 11, 2011 at 12:23 PM, Lc Stanley wrote: > > Hi Sue, > > Just like with the popular negative press, there tends to be a negative > focus on the medical community in regard to Morgellons. It is a waste of > energy that could go into developing treatments in my opinion. > > Social culture more than the scientific minds of the medical community hold > us back from making progress in treating illnesses. The medical community > thrives by being open-minded. People of medicine have been directly > responsible for an end to epileptics being categorized as possessed by > demons and homosexuals being categorized as mentally ill. > > I find it interesting that the abnormal presence of fibers in the skin of > those with Morgellons has been observed repeatedly to consist of cellulose. > Cellulose is the indigestible part of plants that we consume as dietary > fiber. It is not an animal product. Human cells do not produce cellulose; > plant-type cells do. It would seem logical then to experiment with > treatments against plant-type parasitic organisms and to use the enzyme, > cellulase, to breakdown the fibers that cause detriment to the skin. I hope > such experiments are happening. > > Love, > Laura > > > > ------------------------------ > *From:* Susan Tierney McNamara > *To:* Gerald Notaro ; Marian > *Cc:* "joni@smoe.org" > *Sent:* Wed, May 11, 2011 9:16:07 AM > > *Subject:* RE: Article on Morgellons > > How many people worldwide are we talking about? If we do buy the > delusional > diagnosis, does it happen in isolation or in a "mass hysteria" environment? > If doctors are defaulting to a delusional diagnosis because they don't have > enough information, why do they have to put a label on it? Do > anti-depressants > or anti-psychotics relieve the symptoms? I guess these are the questions > that > come to the top of my mind because of the way doctors turned around about > Fibromyalgia (or was that because some pharmaceutical company came up with > a > drug and they needed a disease?) I'm feeling like I have both Scully and > Muldar arguing in my head!! Forgive me!!! > > Take care, Sue ------------------------------ Date: Wed, 11 May 2011 17:08:29 +0000 (UTC) From: waytoblue@comcast.net Subject: Re: purple, tiny jc This song by Bill Evans, Waltz for Debbie, mentions a bug purple bear. Also recorded by Johnny Hartman. In her own sweet world, Populated by dolls and clowns and a prince and a big purple bear, Lives my favourite girl, Unaware of the worried frowns that we weary grownups all wear. ------------------------------ Date: Wed, 11 May 2011 13:32:42 -0400 From: Susan Tierney McNamara Subject: RE: Article on Morgellons Dear Laura! Ok, although the Muldar side of my brain sees a corporate pharmaceutical conspiracy, the Scully part of my brain agrees with you. Science has made amazing strides, and I have no doubt they will figure this one out, too. I usually think most of my own problems come from allergies, including plants, for sure. Take care, Sue From: Lc Stanley [mailto:sillyseabird7@yahoo.com] Sent: Wednesday, May 11, 2011 12:24 PM To: Susan Tierney McNamara; Gerald Notaro; Marian Cc: joni@smoe.org Subject: Re: Article on Morgellons Hi Sue, Just like with the popular negative press, there tends to be a negative focus on the medical community in regard to Morgellons. It is a waste of energy that could go into developing treatments in my opinion. Social culture more than the scientific minds of the medical community hold us back from making progress in treating illnesses. The medical community thrives by being open-minded. People of medicine have been directly responsible for an end to epileptics being categorized as possessed by demons and homosexuals being categorized as mentally ill. I find it interesting that the abnormal presence of fibers in the skin of those with Morgellons has been observed repeatedly to consist of cellulose. Cellulose is the indigestible part of plants that we consume as dietary fiber. It is not an animal product. Human cells do not produce cellulose; plant-type cells do. It would seem logical then to experiment with treatments against plant-type parasitic organisms and to use the enzyme, cellulase, to breakdown the fibers that cause detriment to the skin. I hope such experiments are happening. Love, Laura ________________________________ From: Susan Tierney McNamara To: Gerald Notaro ; Marian Cc: "joni@smoe.org" Sent: Wed, May 11, 2011 9:16:07 AM Subject: RE: Article on Morgellons How many people worldwide are we talking about? If we do buy the delusional diagnosis, does it happen in isolation or in a "mass hysteria" environment? If doctors are defaulting to a delusional diagnosis because they don't have enough information, why do they have to put a label on it? Do anti-depressants or anti-psychotics relieve the symptoms? I guess these are the questions that come to the top of my mind because of the way doctors turned around about Fibromyalgia (or was that because some pharmaceutical company came up with a drug and they needed a disease?) I'm feeling like I have both Scully and Muldar arguing in my head!! Forgive me!!! Take care, Sue ------------------------------ Date: Wed, 11 May 2011 19:46:49 +0100 From: Paul Castle Subject: Re: purple, njc How about Ani DiFranco's pale purple nipples (not something I say every day!) - http://blip.fm/~14guxj best to all PaulC ------------------------------ Date: Wed, 11 May 2011 13:26:13 -0700 (PDT) From: Catherine McKay Subject: Re: purple, njc Purple nurples? Sorry. Couldn't resist. - ----- Original Message ---- > From: Paul Castle > To: joni@smoe.org > Cc: Stewart.Simon@sunlife.com; Marianne Rizzo > Sent: Wed, May 11, 2011 2:46:49 PM > Subject: Re: purple, njc > > How about Ani DiFranco's pale purple nipples > (not something I say every day!) - > > http://blip.fm/~14guxj > > best to all > PaulC ------------------------------ Date: Wed, 11 May 2011 17:08:08 -0700 (PDT) From: Bob Muller Subject: Happy 35th Birthday Hejira http://blogcritics.org/music/article/joni-mitchells-hejira-an-appreciation-on1/ Always nice to know you have company. Bob NP: Zero 7, "In The Waiting Line" ------------------------------ End of JMDL Digest V2011 #138 ***************************** ------- To post messages to the list, send to joni@smoe.org. Unsubscribe by clicking here: mailto:joni-digest-request@smoe.org?body=unsubscribe -------